After being discharged from hospital in mid-December, I was now beginning the several month-long process of recovery from my skin flap surgery. The most important aspect of this was the strict avoidance of putting any pressure on the area from which the flap was taken and the area to which it was relocated. For me,Continue reading “SGAP Surgery: Recovery and Finally Sitting Again.”
Category Archives: My Crohn’s Story
SGAP: Reconstructive Plastic Surgery.
After waiting on the plastic surgery ward for almost 11 hours, I was finally called down to surgery at about 5 pm. I was so relieved that something was finally going to be done about the ridiculously large open wound I’d been living with for a few weeks now. But unfortunately, things didn’t quite goContinue reading “SGAP: Reconstructive Plastic Surgery.”
Ileostomy Surgery, Part 6: The Disaster of Going Home and Needing MORE Surgery.
After everything that I’d endured throughout my time in hospital for my stoma surgery, I was thrilled to be finally going home. My last day was mainly tying a series of loose ends, doing all the before-you-leave checks and sorting out prescriptions. But I also had to have my stomach staples removed. I wasn’t exactlyContinue reading “Ileostomy Surgery, Part 6: The Disaster of Going Home and Needing MORE Surgery.”
Ileostomy Surgery, Part 5: Ups and Downs.
After the previous day’s achievement of walking the 30m green route around the hospital, I was feeling up to taking the 80m red route today. After getting my rear dressing changed as it’d been leaking everywhere overnight (ew…), I took to the corridors. I felt far stronger and less light-headed having been eating and drinkingContinue reading “Ileostomy Surgery, Part 5: Ups and Downs.”
Ileostomy Surgery, Part 4: Getting Moving Again.
On the morning of the 31st of October, my urine catheter was finally removed in the hope that I could try and stand up for the first time later in the day. It definitely stung a little when the tube was removed, but I imagine it would feel much worse to get one put in!Continue reading “Ileostomy Surgery, Part 4: Getting Moving Again.”
Ileostomy Surgery, Part 3: The End of The Epidural.
If you’ve been reading my previous posts about my stoma surgery then you will remember me talking about how I seem to develop a bunch of random issues whilst in hospital. So far there had been my partial blindness and my mysterious shoulder pain, and on the afternoon of the 29th of October, four daysContinue reading “Ileostomy Surgery, Part 3: The End of The Epidural.”
Ileostomy Surgery, Part 2: My Struggle with Pain Relief.
October 27th was without a doubt one of the hardest days for me, not just of my hospital stay and my surgical journey, but of my whole life. It was only the third day since my surgery, and it didn’t get off to a good start. That’s because when the lunch service started, my newContinue reading “Ileostomy Surgery, Part 2: My Struggle with Pain Relief.”
Ileostomy Surgery, Part 1: The First Few Days.
Happy New Year everyone! The eagle-eyed amongst you may have noticed that it’s been a while since I last posted, but it really has been a hectic and difficult few months. After being cancelled the first time around, I finally went in for my pan proctocolectomy (that’s a fancy word for ileostomy surgery) on OctoberContinue reading “Ileostomy Surgery, Part 1: The First Few Days.”
Trauma, Recovery and The End of The Treatment Road.
After fistula surgery That week I spent in hospital after my second fistula surgery was awful. Really awful. I had never stayed solely on a surgical ward before and it honestly felt like a bit of a looney bin. I mean, I can’t blame the other women, being cooped up in a room with no windowsContinue reading “Trauma, Recovery and The End of The Treatment Road.”
Ustekinumab, Anaemia and More Surgery.
Ustekinumab After my nightmare stay in hospital, I was finally feeling hopeful that Ustekinumab may be the drug I’d been looking for. Nothing is ever quick however, so I spent the first few weeks back at home just getting by, waiting for the day that I would wake up and feel something other than terrible.Continue reading “Ustekinumab, Anaemia and More Surgery.”
Me and My Crohn's 