Being admitted I was admitted to hospital on March 15th, 2019 for my first ever surgery. Even the journey to the hospital was a nightmare. I felt like I’d reached an all-time low with my internal symptoms, and my extra-intestinal symptoms had also reached rock bottom. The erythema nodosum which I had suffered from soContinue reading “Surgery, Anaphylaxis and Ustekinumab.”
Category Archives: My Crohn’s Story
Clinical Trials, Abscesses and Fistulas.
Clinical trial enrolment In late December 2018, I began the process of entering a clinical trial for a new biologic called Risankizumab. The first thing anyone looking to enrol in a trial will likely have to do is a “washout period”, basically where you stop taking all other treatments for about 6-8 weeks to ensureContinue reading “Clinical Trials, Abscesses and Fistulas.”
Coming and Going, Adalimumab, Methotrexate and Yet Another Liquid Diet.
Going back to university When I finally returned to university in the autumn of 2018, I was so excited to be back. Although most of my friends from first year and my old flatmates had moved off campus, as a “disabled” student I was entitled to remain in a dorm. This meant that I would be livingContinue reading “Coming and Going, Adalimumab, Methotrexate and Yet Another Liquid Diet.”
More Steroids, Another Liquid Diet and Adalimumab.
Steroids So, by Easter 2018 it was clear that my journey with infliximab was over and my doctors decided that whilst they figured out the next step, I should go back on steroids. I started on a lower dose than I had previously taken, but this had next to no effect and my symptoms wereContinue reading “More Steroids, Another Liquid Diet and Adalimumab.”
Infliximab, Antibodies and Mercaptopurine.
Infliximab Since my first signs of a flare in May 2013, my Crohn’s hadn’t been under control. It was now the 21st April 2014, and after struggling for over a year on steroids and antibiotics with little success, I was admitted to hospital again for investigations. It was supposed to be just the usual abdominalContinue reading “Infliximab, Antibodies and Mercaptopurine.”
My First Flare, Steroids and Azathioprine.
First signs of a flare After returning to school and being back on a relatively normal diet, I was starting to think that things were back on track for me. I had this whole Crohn’s thing under control. But in March 2013 my symptoms began to creep back in. First the cramps, then the nausea, then theContinue reading “My First Flare, Steroids and Azathioprine.”
The Liquid Diet, Erythema Nodosum and Going Back to School.
Being admitted for treatment So, after getting my Crohn’s diagnosis in December 2011, I returned to hospital in January 2012 to begin treatment and it honestly couldn’t have come soon enough. I know I wanted to postpone starting the liquid diet until after Christmas, and I certainly enjoyed my roast turkey with all the trimmings,Continue reading “The Liquid Diet, Erythema Nodosum and Going Back to School.”
My Crohn’s Diagnosis.
Falling ill So, as I sit on my bed writing this I am realising that it has been over 8 years since my journey with Crohn’s began. I had only just turned 12 years old when I first fell ill and honestly, as sad as it sounds, I cannot remember what it feels like toContinue reading “My Crohn’s Diagnosis.”
Me and My Crohn's 