Trauma, Recovery and The End of The Treatment Road.

After fistula surgery That week I spent in hospital after my second fistula surgery was awful. Really awful. I had never stayed solely on a surgical ward before and it honestly felt like a bit of a looney bin. I mean, I can’t blame the other women, being cooped up in a room with no windowsContinue reading “Trauma, Recovery and The End of The Treatment Road.”

Surgery, Anaphylaxis and Ustekinumab.

Being admitted I was admitted to hospital on March 15th, 2019 for my first ever surgery. Even the journey to the hospital was a nightmare. I felt like I’d reached an all-time low with my internal symptoms, and my extra-intestinal symptoms had also reached rock bottom. The erythema nodosum which I had suffered from soContinue reading “Surgery, Anaphylaxis and Ustekinumab.”

Coming and Going, Adalimumab, Methotrexate and Yet Another Liquid Diet.

Going back to university When I finally returned to university in the autumn of 2018, I was so excited to be back. Although most of my friends from first year and my old flatmates had moved off campus, as a “disabled” student I was entitled to remain in a dorm. This meant that I would be livingContinue reading “Coming and Going, Adalimumab, Methotrexate and Yet Another Liquid Diet.”

More Steroids, Another Liquid Diet and Adalimumab.

Steroids So, by Easter 2018 it was clear that my journey with infliximab was over and my doctors decided that whilst they figured out the next step, I should go back on steroids. I started on a lower dose than I had previously taken, but this had next to no effect and my symptoms wereContinue reading “More Steroids, Another Liquid Diet and Adalimumab.”

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