My experiences On Friday I was scheduled to have a life-changing operation for which I had been waiting for months. Since March 2018, I’ve had by far the worst flare up I’ve ever experienced and several months ago I officially ran out of treatments. With my list of complications quickly growing and my physical stateContinue reading “The Crisis in Hospital Cancellations: How to Cope with Being Let Down.”
Tag Archives: Ileostomy
Stoma for a Day: An Experiment.
If you’ve been reading my previous posts, you will know that I am about to have surgery to remove my entire colon and get a permanent ileostomy. In preparation, I attended a stoma nurse clinic where I was given an unexpected tool to help me prepare for waking up from surgery: a practice stoma kit.Continue reading “Stoma for a Day: An Experiment.”
Before Stoma Surgery: What to Expect.
Seeing as my ileostomy surgery will take place in less than a week now (yikes!), I have been undergoing all the necessary pre-surgery tasks. The weeks leading up to surgery, particularly one as major as stoma surgery, can be daunting, so I have documented the process so people can see exactly what to expect andContinue reading “Before Stoma Surgery: What to Expect.”
Trauma, Recovery and The End of The Treatment Road.
After fistula surgery That week I spent in hospital after my second fistula surgery was awful. Really awful. I had never stayed solely on a surgical ward before and it honestly felt like a bit of a looney bin. I mean, I can’t blame the other women, being cooped up in a room with no windowsContinue reading “Trauma, Recovery and The End of The Treatment Road.”
Me and My Crohn's 